Archive for the ‘Legislation’ Category

Dear friends:
The enclosed message is disturbing to say the least.  Particularly with our ages and PD conditions in mind, please take the time to be informed of the ramifications of the Health Care Reform Bill.  I believe you will, as I am, completely shocked that such a discussion could be taking place in our country.
Incidentally, after I expressed concern last week to Congressman Bill Nelson, he replied by  correspondence that he is fully endorsing this bill……………………  I wonder if it is ANOTHER bill that the congress has not taken the time to read?

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Subject:Fw: Page 425 of Health Care Bill

Everyone must read the message below and please listen to the Fred Thompson interview. Facts about the Health Care Bill are revealed on the interview that you haven’t heard on television or  the presidents speech this past week. This is not a spin story, but real facts. Please read and listen to the interview and e-mail it on. THIS IS A MUST READ FOR ALL OF US !!!!!!!!!!

Subject: Page 425 of Health Care Bill

This indeed takes a shot at retirees–we cannot let this happen to us–tell all your friends by voice, email, phone or letter that it is totally unacceptible!!!!!!
This is unbelievable. I already called AARP to ask them why they represent us and support this house bill. Believe it or not this organization does not have an e-mail contact that you can register your comment. You can either call or post your comment and mail it to them.

>  Page 425 of Health Care Bill – Listen to this interview Fred Thompson’s Radio Show interviewing20Betsy McCaughey (pronounced Mc Coy).  Or look it up on www.fredthompsonshow.com, under interviews.
> On page 425 it says in black and white that EVERYONE on Social Security, (will include all Senior Citizens and SSI people) will go to MANDATORY counseling every 5 years to learn and to choose from ways to end your suffering (and your life).  Health care will be denied based on age.  $500 Billion will be cut from Seniors healthcare.   The only way for that to happen is to drastically cut health care, the oldest and the sickest will be cut first.   Paying for your own care will not be an=2 0option.
>Now, CALL YOUR PEOPLE IN WASHINGTON !!!!!!!!! !!!!!!!!!  Tell them to read page 425 if they don’t read anything else.  Surely  some of them have parents.
>”ON PAGE 425 OF OBAMA’S HEALTH CARE BILL, the Federal Government will require EVERYONE who is on Social Security to undergo a counseling session every 5 years with the objective being that they will explain to them just how to end their own life earlier. Yes…They are going to push SUICIDE to cut medicare spending!”
>Fred Thompson: Interviews

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Take Action

Senate Committee is Considering Defense Spending Bill!

Ask Your Senators Today to Support DoD Parkinson’s Research!
This morning, the U.S. Senate Appropriations Defense Subcommittee marked up the Defense spending bill.  The full Appropriations Committee plans to take up the Defense spending bill Wednesday.  The bill sets the funding levels for all Defense programs, including the Parkinson’s disease research program, Neurotoxin Exposure Treatment Research Program (NETRP).  With your help, we hope to make this year an historic one by securing NETRP Parkinson’s disease research funding in the Senate Defense Appropriations bill for the first time.  As you may know, PAN advocates and our congressional champions have successfully secured NETRP funding each year for ten years through the U.S. House of Representatives version of the Defense bill, but NETRP has never been funded in the Senate bill.  Please take a few minutes to e-mail your senators now to ask they support this essential Parkinson’s disease research! Although the Senate has yet to fund Parkinson’s disease research directly in the Senate Defense bill, they have agreed with their congressional colleagues in conference committee each year that this important research must be funded.  In fact, sixteen senators have already expressed their support for NETRP in April of this year.  Let’s encourage our senators to stand up for Parkinson’s disease research from day one by including Parkinson’s funding directly in the Senate Defense bill!

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From The Parkinson’s Action Network                                                                                                                                    The Senate Considers Expanding Stem Cell Research in a New Way
Ask Your Senators to Support this New Plan!

Recently, the Senate added a new section to the funding bill, Labor, Health and Human Services, and Education Appropriations–known in short as “Labor-HHS Appropriations”–that would provide an incremental measure to expand ethical embryonic stem cell research.The provision simply moves the date of the current federal policy on stem cell research from August 9, 2001, to June 15, 2007, while retaining the strong ethical guidelines contained in S. 5.PAN, along with the Coalition for the Advancement of Medical Research (CAMR), is supporting this measure, but it does not diminish our efforts to override the President’s veto and enact S. 5, the Stem Cell Research Enhancement Act!

Now is the time to educate your senators about this new stem cell strategy! Let them know that you support the incremental effort to allow more stem cell lines available for research, and tell them about the hope it provides you and your family for better treatments and a cure. We expect a vote on the larger appropriations bill before August but will keep you informed as we hear more about when the “Labor-HHS Appropriations” bill is headed for a vote.To read more about stem cells and PAN’s endorsement of the new stem cell strategy, click here.

Please Contact:

Sen. Mel Martinez

Sen. Bill Nelson

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Schedule a District Meeting with Your Senators NOW on NETRP!

Congress has adjourned for “August recess” from August 4, 2007, through Labor Day. Your senators are back home in your state and will be attending local events and meetings during the month of August.While your senators are home over the next few weeks, please take this opportunity to educate them about ground-breaking Parkinson’s disease research funded by the Department of Defense (DoD) — named the Neurotoxin Exposure Treatment Research Program (NETRP).  We need the help of every member of Congress to ensure that NETRP continues to be Parkinson’s focused! In spite of being the only Parkinson’s-focused federal program, not to mention the most innovative and agile one, we struggle every year to obtain needed research dollars for NETRP.  In recent years, we have also struggled to maintain NETRP’s essential focus on Parkinson’s disease.  The Senate is expected to consider the Defense spending bill upon returning to Washington in the fall.  We are trying to secure needed funding and maintain the Parkinson’s focus of the program in the Senate bill. If you have not already, please call to set up meetings with your senators in their district office during the August recess to discuss this important Parkinson’s program.  If the Member’s schedule is already full, please ask if the senator will be hosting a town hall meeting or attending any community events that you can go to.  Be sure to let them know you are calling to support Parkinson’s research at the Department of Defense.  Thanks to those of you who have already scheduled meetings. Please print the “Dear Colleague” to give the senator or staff member during your visit.  Click here for more information on NETRP.  Please take note that this alert applies only to conversations with your senators.  Look for further action alerts about this program in the House of Representatives.  Thank you for all you do, and please let us know how your meetings go!

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I would like to extend a warm welcome to members of the North Florida Parkinsons Awareness Group and to those who found us while searching for Parkinsons related information and research. The NFPAG is headquartered in Tallahassee, Florida and serves North Florida, South Georgia and Southeastern Alabama.

This website is designed to act as a central point of information for the NFPAG. Members are encouraged to pass along information and share thoughts or ideas in order to make the website a valuable tool from which we can all benefit. The plan is to have an up to date site filled with information including,

  • Meeting minutes
  • Member Info and Feedback
  • Notification of NFPAG events
  • Info on the latest Clinical Trials and Medications
  • News of legislation with an impact on Parkinsons
  • Exercise Ideas
  • Recipes and Nutritional Planning

These are just a few areas that we can touch on. Member participation and knowledge sharing will be an important part of the NFPAG and this website will help us get our ideas out to all.

If you have any ideas or comments please send me email at nfpag1@gmail.com .

Thank you for your participation and help!

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